We are a registered CIO who manage a peer run support group, full of people who have lived experience of Endometriosis, Adenomyosis, PCOS and other gynaecological conditions. We try our best to have a holistic view of supporting people and recognise that no two people need the same support.

How Can We Help?

A community of people who know what you are going through
Coping mechanisms, tips and tricks
Emotional support
Guidance with PIP & ESA applications
Surgery aftercare advice
Help with GP referrals

What Is Endometriosis?

Endometriosis is a condition in which cells that are similar to the lining of the womb grow in other parts of the body.

It is often characterised as a gynaecological disease, but it can be found in or on any part of the body.

It is a chronic condition which currently has no cure.

Around 175 million women & those assigned female at birth have Endometriosis.

It takes an average of 8 years to get a diagnosis from the onset of symptoms.

Endometriosis affects 1.5 million people in the UK

Research into Endometriosis has been massively underfunded, so we still don’t know what causes Endometriosis or why

What Are The Symptoms Of Endometriosis?

Pelvic pain
Pain during and after sex
Heavy and irregular periods
Difficulty getting pregnant/infertility
Problems with the bowel and the bladder
Back, shoulder and leg pain
Fatigue
Bloating (commonly referred to as endo belly)

What Treatments Are Available For People With Endometriosis?

Currently there is no cure for Endometriosis, though some people do find relief by using the following methods;

Laparoscopic (keyhole) surgery. Surgeons can use different methods to treat the endo, such as excision, ablation and laser.
Hormonal treatments - this includes medication like the contraceptive pill and the Mirena coil.
GnRH Analogues - this treatment is usually given via injection. It induces a temporary chemical menopause which reverses when you stop having the injection.
Painkillers such as Naproxen and Co-codamol
Alternative therapies like TENS machines and BeYou patches

What is Adenomyosis?

Adenomyosis is a disease in which endometrial tissue grows in the muscle wall of the uterus. This is NOT the same as Endometriosis.

Symptoms

Heavy periods that last for a long time, severe period pain, a feeling of pressure in your pelvis and bloating.

Treatment

What is PCOS?

Polycystic Ovarian Syndrome is a disorder of the endocrine system which makes the body create too many hormones.

Symptoms

Irregular or absent periods, irregular or absent ovulation, infertility, excess facial & body hair, oily skin & acne, thinning hair on the scalp, being overweight & difficulty losing weight, depression & mood changes, & insulin resistance.