We are a registered CIO who manage a peer run support group, full of people who have lived experience of Endometriosis, Adenomyosis, PCOS and other gynaecological conditions. We try our best to have a holistic view of supporting people and recognise that no two people need the same support.
How Can We Help?
- A community of people who know what you are going through
- Coping mechanisms, tips and tricks
- Emotional support
- Guidance with PIP & ESA applications
- Surgery aftercare advice
- Help with GP referrals
What Is Endometriosis?
Endometriosis is a condition in which cells that are similar to the lining of the womb grow in other parts of the body.
It is often characterised as a gynaecological disease, but it can be found in or on any part of the body.
It is a chronic condition which currently has no cure.
Around 175 million women & those assigned female at birth have Endometriosis.
It takes an average of 8 years to get a diagnosis from the onset of symptoms.
Endometriosis affects 1.5 million people in the UK
Research into Endometriosis has been massively underfunded, so we still don’t know what causes Endometriosis or why
What Are The Symptoms Of Endometriosis?
- Pelvic pain
- Pain during and after sex
- Heavy and irregular periods
- Difficulty getting pregnant/infertility
- Problems with the bowel and the bladder
- Back, shoulder and leg pain
- Fatigue
- Bloating (commonly referred to as endo belly)
What Treatments Are Available For People With Endometriosis?
Currently there is no cure for Endometriosis, though some people do find relief by using the following methods;
- Laparoscopic (keyhole) surgery. Surgeons can use different methods to treat the endo, such as excision, ablation and laser.
- Hormonal treatments - this includes medication like the contraceptive pill and the Mirena coil.
- GnRH Analogues - this treatment is usually given via injection. It induces a temporary chemical menopause which reverses when you stop having the injection.
- Painkillers such as Naproxen and Co-codamol
- Alternative therapies like TENS machines and BeYou patches
What is Adenomyosis?
Adenomyosis is a disease in which endometrial tissue grows in the muscle wall of the uterus. This is NOT the same as Endometriosis.
Symptoms
Heavy periods that last for a long time, severe period pain, a feeling of pressure in your pelvis and bloating.
Treatment
- Anti-inflammatory pain medication
- Medication to control blood loss
- Hormone therapy
- Hysterectomy
What is PCOS?
Polycystic Ovarian Syndrome is a disorder of the endocrine system which makes the body create too many hormones.
Symptoms
Irregular or absent periods, irregular or absent ovulation, infertility, excess facial & body hair, oily skin & acne, thinning hair on the scalp, being overweight & difficulty losing weight, depression & mood changes, & insulin resistance.
Treatment
- Hormonal medication to control androgens
- Diabetes medication to control insulin resistance
- Lifestyle changes and treatments to control unwanted symptoms such as laser hair removal
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