We are a registered CIO who provide a safe, confidential community and a wide range support network for all people suffering with the physical and emotional aspects of Endometriosis, Adenomyosis, PMOS and all gynaecological conditions.
We operate mainly In Hull and East Yorkshire, though we would never turn anyone away from further afield! We have regular coffee meetings and host fundraising events for our charity and local Endometriosis research.
We work closely with the Castle Hill BSGE Endometriosis Specialist Centre, GP’s, Local MP’s, other charities, the NHS and Hull University in order to provide you with the best support & information possible.
We can help with…..
- PIP, ESA and LCWRA applications
- Help with GP’s & referrals
- Surgery aftercare advice
- Emotional wellbeing
- Coping mechanisms
- A community of people who understand what you’re going through
Meet The Team
Helen
Hey, I’m Helen (also known as Beryl)! I’m Co-Founder and the Marketing, communications & Events Planning Manager of HEY Endo.
I was 10 years old when I started my periods. Over the next 7 years I was in and out of A&E with severe pain. I was told I had IBS, appendicitis, and was even told all the pain was in my head. I failed my GCSE’s and I have lost countless jobs due to poor attendance.
I was finally diagnosed with Endometriosis in 2009. After 5 Laparoscopies to treat Endometriosis over the years, I was also diagnosed with Adenomyosis in 2023 and chose to have a Total Hysterectomy with Bilateral Salpingectomy (removal of Uterus, Cervix and both Fallopian Tubes) which was done August 2024.
Ashleigh
Hello, I’m Ashleigh! I’m Co-Founder and Financial Manager of HEY Endo!
I started having periods at 9 years old. Through my teens, I was in constant pain and had heavy periods. I was told I had IBS, pelvic inflammatory disease, and that I was a growing girl and to ‘get on with it’. Despite my mum having Endo, I was told that it was very rare, but it was the only thing that hadn’t been tested for.
I was finally diagnosed in March 2017 after having my first laparoscopy. I was lucky enough to conceive my daughter in October 2017 but my Endo returned 3 months after giving birth and I had a second laparoscopy in May 2021.
Unfortunately, I have struggled with several early miscarriages due to Endo, as my ovaries are stuck to my bowel and pelvic wall. I also have Endo on my womb, fallopian tubes, ovaries and bowel and i’m suspected to have Adenomyosis and is awaiting a Hysterectomy